Chronic Disease Awareness Day at the Capitol – Denver

Once, it was simply called MS Day at the Capitol but in the last couple of years, it has expanded to encompass 34 volunteer health organizations that cover a wide variety of diseases and re-titled, “Chronic Disease Awareness Day at the Capitol.”

93-coloradostatecapitolbuilding

From the Chronic Disease Collaborative (CCC) website:

Thursday, March 9, 2017 @ 7:30 A.M.

What: Chronic Disease Awareness Day: Celebrating Milestones

When: Thursday, March 9th. Registration begins at 7:30 A.M.  Program begins at 8:00 A.M.

Where:  We begin the morning with registration and breakfast at The First Baptist Church, 1373 Grant St, Denver, CO 80203 for brief advocacy training and an opportunity to develop your story and your talking points.

We will proceed across the street to the State Capitol, 1410 Grant St, Denver, CO 80203 to meet our state legislators. Afterward, join us for a box lunch and brief presentation in the Old Supreme Court Chambers.

Chronic Disease Awareness Day helps educate our legislators about Chronic Diseases and healthcare issues in Colorado. This is your opportunity to share your stories and show your support for those living with Chronic Diseases.

Register HERE

Family and friends are always welcome.

We hope to see you there!

Chronic Disease Awareness Day at the Capitol 2015

Early in the morning of March 5, 2015, advocates, friends, family and leaders gathered in the Old Supreme Court Chambers at the Colorado State Capitol building for “Chronic Disease Awareness Day at the Capitol.”  Featured speakers were:

  1. Carrie Nolan, President of the CO-WY Chapter of the National Multiple Sclerosis Society.
  2. Candace DeMatteis, Partnership to Fight Chronic Disease.
  3. Dr. Adam Atherly, University of Colorado School of Public Health.
  4. Lonnie and Jan McIntrosh, Colorado Chapter – Alzheimer’s Association.
  5. Connie Carpenter Phinney of the Davis Phinney Foundation and an Olympic Champion.
Senator Linda Newell, Kirk, Carrie Nolan, NMSS
(L to R) State Senator Linda Newell, Kirk P. Williams ~ MS Advocate, Carrie Nolan ~ NMSS Chapter President, in the Senate Chambers of the Colorado State Capitol building during Chronic Disease Awareness Day at the Capitol, 2015.

The attendees then gathered in the Senate Chambers where State Senator Linda Newell (State Senate District 26) made a tribute to Chronic Disease organizations and sufferers.

Chronic Care Collaborative member organizations:

  • Alzheimer’s Association, Colorado Chapter
  • American Cancer Society Cancer Action Network
  • American Diabetes Association
  • American Heart Association
  • American Liver Foundation- Rocky Mountain Division
  • American Lung Association of Colorado
  • Arthritis Foundation Rocky Mountain Chapter
  • Brain Injury Alliance of Colorado
  • Can Do Multiple Sclerosis
  • Colorado AIDS Project
  • Colorado Coalition for the Medically Underserved
  • Colorado Gerontological Society
  • Colorado Ovarian Cancer Alliance
  • Crohn’s and Colitis Foundation of America, Rocky Mountain Chapter
  • Easter Seals Colorado
  • Epilepsy Foundation of Colorado
  • Hep C Connection
  • Huntington’s Disease Society of America, Rocky Mountain Chapter
  • Leukemia and Lymphoma Society, Rocky Mountain Chapter
  • Lupus Foundation of Colorado
  • March of Dimes, Colorado Chapter
  • Mental Health America of Colorado
  • Muscular Dystrophy Association
  • NAMI (National Alliance on Mental Illness) Colorado
  • National Hemophilia Foundation, Colorado Chapter
  • National Kidney Foundation of Colorado, Montana and Wyoming
  • National MS Society, Colorado-Wyoming Chapter
  • Parkinson Association of the Rockies
  • THRIVE: The Persons Living with HIV/AIDS Initiative of Colorado
  • Rocky Mountain MS Center
  • Rocky Mountain Stroke Center

Medical Exemption to Xcel’s Tiered Electricity Rates

After 3 years, Colorado FINALLY has a Medical Exemption to Xcel Energy’s summertime Tiered Electricity Rates!

This applies to Xcel Energy’s Colorado electric service customers with a medical necessity for the high utilization of air conditioning in the summer and who are within the household income guidelines. Of course, a customer’s actual (historical) electrical usage may not make it practical and worthwhile to apply for this exemption.

I have received comments from several people with MS that it is disheartening a means test is still required and the program does not benefit enough Colorado Xcel customers with MS.

In general, the Colorado Medical Exemption Program (CMEP) offers a rate of $0.063 per kilowatt-hour (kWh) for all electricity used each month from June through September 2014. The rates will revert to the standard rates beginning in October of 2014. This means a participant will pay one rate for the entire summer therefore avoiding paying the higher tiered rate. All other customers are charged standard tiered electricity rates during the summer: $0.046 for the first 500 kilowatt-hours and $0.09 for use exceeding 500 kilowatt-hours.

The hope is this WILL help a meaningful number of people with MS and it is absolutely a substantial improvement over Xcel’s “experiment” last year.

Perhaps you or someone you know with a medical condition resulting in heat sensitivity can benefit. The exemption is available to any Colorado Xcel Energy customer with a medical need and not just those with MS. Individual homes will be receiving complete information on this exemption program in the next couple of weeks. It will include a letter from Patrick Boland (Xcel), Healthcare Provider form, Participant Application, and program description. NOTE: application submission deadline is May 1. Click here for general information on eligibility and the Federal Poverty Level. Call the Colorado-Wyoming Chapter of the National Multiple Sclerosis Society at 303-698-5439 to find out more. The Chapter is the official administrator of the CMEP.

If you are not eligible for this plan or choose not to participate, you may find Xcel Energy’s Average Monthly Payment Plan may also help balance out your energy bills during the year. This plan gives a more predictable monthly payment and spreads your heating and cooling costs over the entire year.

Many thanks to those Coloradans with MS who provided documentation and/or in-person testimony. Without their efforts, this accommodation would have never happened.